{"id":7654,"date":"2025-02-28T18:25:23","date_gmt":"2025-02-28T17:25:23","guid":{"rendered":"https:\/\/www.udrugamrkz.hr\/?p=7654"},"modified":"2025-03-03T18:33:51","modified_gmt":"2025-03-03T17:33:51","slug":"kampanja-zagrli-za-rijetke","status":"publish","type":"post","link":"https:\/\/www.udrugamrkz.hr\/?p=7654","title":{"rendered":"Kampanja &#8220;Zagrli za rijetke&#8221;"},"content":{"rendered":"\n<p>28.velja\u010de &#8211; Me\u0111unarodni dan rijetkih bolesti obilje\u017eava se s ciljem podizanja svijesti o rijetkim bolestima i potrebama osoba koje od njih pate. Ovaj dan pru\u017ea priliku za isticanje problema s kojima se susre\u0107u oboljeli od rijetkih bolesti, ali i za promicanje solidarnosti, istra\u017eivanja te podr\u0161ke njihovim obiteljima.                                                                               Rijetke bolesti definiraju se kao one koje poga\u0111aju manje od jednog pojedinca na 2.000 stanovnika.                         Ovogodi\u0161nje obilje\u017eavanje u organizaciji Hrvatskog saveza za rijetke bolesti simboli\u010dno u koje smo se i mi Masla\u010dci uklju\u010dili poziva na zagrljaj s nazivom kampanje \u201eZagrli za rijetke\u201c.                                                                                            Cilj Me\u0111unarodnog dana rijetkih bolesti jest mobilizirati zajednicu, pru\u017eiti podr\u0161ku oboljelima i njihovim obiteljima te potaknuti vlade, organizacije i istra\u017eiva\u010dke institucije na ve\u0107u posve\u0107enost ovoj oblasti.                                                    Upravo to mo\u017eemo u\u010diniti i \u201esamo zagrljajem\u201c.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"720\" height=\"540\" src=\"https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481154403_8991117521000239_7669229770399876292_n.jpg\" alt=\"\" class=\"wp-image-7655\" style=\"width:452px;height:auto\" srcset=\"https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481154403_8991117521000239_7669229770399876292_n.jpg 720w, https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481154403_8991117521000239_7669229770399876292_n-300x225.jpg 300w\" sizes=\"(max-width: 720px) 100vw, 720px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/480937045_8991105967668061_2754326581079379283_n-1024x768.jpg\" alt=\"\" class=\"wp-image-7656\" style=\"width:452px;height:auto\" 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src=\"https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481680324_8991101594335165_1882077793248593505_n-768x1024.jpg\" alt=\"\" class=\"wp-image-7664\" style=\"width:350px;height:auto\" srcset=\"https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481680324_8991101594335165_1882077793248593505_n-768x1024.jpg 768w, https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481680324_8991101594335165_1882077793248593505_n-225x300.jpg 225w, https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481680324_8991101594335165_1882077793248593505_n-1152x1536.jpg 1152w, https:\/\/www.udrugamrkz.hr\/wp-content\/uploads\/481680324_8991101594335165_1882077793248593505_n.jpg 1350w\" sizes=\"(max-width: 768px) 100vw, 768px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>28.velja\u010de &#8211; Me\u0111unarodni dan rijetkih bolesti obilje\u017eava se s ciljem podizanja svijesti o rijetkim bolestima i potrebama osoba koje od njih pate. Ovaj dan pru\u017ea priliku za isticanje problema s kojima se susre\u0107u oboljeli&#46;&#46;&#46;<\/p>\n","protected":false},"author":1,"featured_media":7660,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"footnotes":""},"categories":[1],"tags":[],"_links":{"self":[{"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/posts\/7654"}],"collection":[{"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=7654"}],"version-history":[{"count":1,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/posts\/7654\/revisions"}],"predecessor-version":[{"id":7665,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/posts\/7654\/revisions\/7665"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=\/wp\/v2\/media\/7660"}],"wp:attachment":[{"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=7654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=7654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.udrugamrkz.hr\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=7654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}